tag:blogger.com,1999:blog-6125103046295068134.post9088813194311342970..comments2023-08-11T07:56:32.173-04:00Comments on TJED Mothers: Am I brave enough to jump?Shiloah Bakerhttp://www.blogger.com/profile/01710431618444268005noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-6125103046295068134.post-74243723914331923162008-11-13T23:49:00.000-05:002008-11-13T23:49:00.000-05:00I'm sorry it's taken me a few days to get around a...I'm sorry it's taken me a few days to get around and read these posts. I wanted to share my experience, which was not as intense as yours, but similar. Isaac, my oldest at 9, has always had issues: speech when he was young, not sleeping, violent outbursts, attention issues, etc. Turns out he has Aspergers, but I didn't find that that ou till this year. So, the IEP, speech people and school district decided to do "therapy" for him, but he had to go to the school for it. He went for 45 minutes 2 days a week...only 15 minutes of that time was spent with a speech therapist. It disrupted our whole day. It was torture for me and 5 other kids to sit in the van and wait for him because it was less gas to wait for him than to go home and come back. This school year I pulled him from it. I didn't want him going for "fun", I wanted him going for help, and that's not what he was getting. <BR/><BR/>On the other hand, my other son with Autism, has major speech and developmental delays and so he has a speech therapist coming to our home every other week. I do a lot of the work with him, we have fun, it's not disruptive to our life, and the therapist gives me ideas and brings in stuff for us to try (we did the computer thingy too, and some sign language). He's coming around and we are back to our old schedule, not as many disruptions and not as stressed out. <BR/><BR/>Some of the things that stood out to me is that he is getting bullied and misunderstood and no one comes to his defense. My heart goes out to you and him, it's never fun to see that happen, and even more frustrating to see that no one does anything. You are a great mother, doing the best you can, and if I can be so bold as to suggest something: ask the therapists to show you what you can do for him at home and work with him more there and skip more on preschool. He will always have the IEP that will follow him, but you can be in charge of it and say when enough is enough. <BR/><BR/>I'm sending hugs too. It will all work out.Dawn Salisburyhttps://www.blogger.com/profile/11301989781566391299noreply@blogger.comtag:blogger.com,1999:blog-6125103046295068134.post-14019701590183093672008-11-11T10:32:00.000-05:002008-11-11T10:32:00.000-05:00I'm glad to know you've found Signing Time. And w...I'm glad to know you've found Signing Time. And wish you the very best.<BR/>I actually went to public school my whole life, but my family now does "homeschool" with the younger ones. And my husband was homeschooled. It is nice to see the other end, but I have to go to my husband a lot for support when a friend decides to criticize my choices. I understand what you mean about jumping off the conveyer belt. I'm just glad I've had the last 3 years without kids to get used to the idea, and to study.Mariehttps://www.blogger.com/profile/14296702663697206688noreply@blogger.comtag:blogger.com,1999:blog-6125103046295068134.post-40974993181451575462008-11-10T23:52:00.000-05:002008-11-10T23:52:00.000-05:00Heather you don't know me and I don't know you, bu...Heather you don't know me and I don't know you, but super hugs to you!! You're doing the right things, the answer will come if you keep trusting and waiting...Idaho Suttershttps://www.blogger.com/profile/05708347400886212448noreply@blogger.comtag:blogger.com,1999:blog-6125103046295068134.post-8614143058395732842008-11-10T20:32:00.000-05:002008-11-10T20:32:00.000-05:00I don't know if you are a hugging type of person, ...I don't know if you are a hugging type of person, but I am sending you BIG hugs. Trust yourself and those intuitions you have. They are given to you to guide you - no one else could possibly know those answers except you. And yes, it IS difficult to jump, but if it's right for your family you won't feel peace until you do.<BR/><BR/>You can do it. The good news is dynamics are always changing and it will be easier before you know it. The bad news is dynamics are always changing and you will miss your todays tomorrow. :)Pirate Princesshttps://www.blogger.com/profile/12164956276371481421noreply@blogger.comtag:blogger.com,1999:blog-6125103046295068134.post-27247680890249962262008-11-10T16:47:00.000-05:002008-11-10T16:47:00.000-05:00I own every signing time out to date. So yes we us...I own every signing time out to date. So yes we use it a lot. He really resists signing because in his mind he said it perfectly fine. Just somewhere between forming it in his head and come out his mouth it becomes jumbled. I think you are right that in the home is the best way to over come those challenges. We actually ditched preschool today and had a nice productive day in the home and some one on one ST time with just J and I. <BR/>How fun for you to able to offer the reflections of TJed from the other spectrum. As a mom of young kids it is hard to view the end in sight. To know what they will be like even 10 years from now.<BR/>H.Cub Scout Roundtable Commissioner Heatherhttps://www.blogger.com/profile/06121920339958073992noreply@blogger.comtag:blogger.com,1999:blog-6125103046295068134.post-41517217660835979982008-11-10T11:52:00.000-05:002008-11-10T11:52:00.000-05:00You sound like an excellent mom, and my heart goes...You sound like an excellent mom, and my heart goes out to you. I'm not a mom yet, but my family of origin does TJEd now. And I plan to homeschool my children. I just wanted to ask if you know about Signing Time! It makes sign language fun, and it is recommended by many SLP's for children with speech apraxia. Just a thought at another way to work together on communication in your family (maybe your other children would be willing to participate with the videos as well). <BR/>... and now for my novel. It seems that the time he spends away in therapy takes away from time your family could be learning about how to communicate with him, whether with ASL or by learning to understand his speech. Doesn't it make most sense for him to learn with family first (those who are most likely to be compassionate and take the time that he needs), and then with others second? I'm not trying to lecture, just trying to back you up with my thoughts.Mariehttps://www.blogger.com/profile/14296702663697206688noreply@blogger.com